Kristen Wheeden - Profile and Journalist Details
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Kristen Wheeden
Verified
Columnist, BioNews Services
Bethesda
Beats
Sports , Faits Divers , General News , Politics , Health
eco-friendly products
Content
By Kristen Wheeden, Steve Bryson Verified, Margarida Maia Verified, Marisa Wexler Verified| Porphyria News Verified Everyone seems so very excited for spring. The birds are chirping, tree buds are sprouting, and the sun hangs hotter and higher in the sky for longer stretches each day. Well, almost everyone. Right on cue, this is when Shadow Jumpers — as we lovingly call our people living with erythropoietic protoporphyria (EPP) — must make extra efforts to dodge the sun. The launch of spring has them bracing for the inevitable pain they’ll experience.
By Kristen Wheeden, Andrea Lobo| Porphyria News Verified Last week was a rallying cry for rare disease patients, their families, and other advocates to make their voices heard. I spent time on Capitol Hill in Washington, D.C., standing alongside fellow advocates for a week of activity centered on Friday’s Rare Disease Day. Representing the United Porphyrias Association (UPA) as part of the EveryLife Foundation for Rare Diseases, I joined others in raising awareness and pushing for progress.
By Kristen Wheeden, Steve Bryson Verified, Margarida Maia Verified, Marisa Wexler Verified| Porphyria News Verified Everyone seems so very excited for spring. The birds are chirping, tree buds are sprouting, and the sun hangs hotter and higher in the sky for longer stretches each day. Well, almost everyone. Right on cue, this is when Shadow Jumpers — as we lovingly call our people living with erythropoietic protoporphyria (EPP) — must make extra efforts to dodge the sun. The launch of spring has them bracing for the inevitable pain they’ll experience.
Company Info
BioNews Services
Bionews, Inc. is a digital health solutions company based in Delaware, founded in 2013. It specializes in supporting rare disease communities through over 68 health media websites, which serve more than 500,000 registered members. The company is committed to authenticity, with over half of its team having personal experience with rare diseases as patients or caregivers. Bionews connects patients, caregivers, and healthcare stakeholders by providing trusted news, clinical updates, and community resources. Its services include digital media platforms that offer condition-specific content, community engagement through forums and advocacy resources, and content development featuring articles, podcasts, and videos. The company also tracks user engagement and provides analytics to support client campaigns. Bionews collaborates with biotech, life sciences, and healthcare companies to enhance marketing and patient engagement in the rare disease sector.
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Founded: 2013